SI Club Kuwait’s Thalassemia Awareness project was initiated to • meet the Soroptimist International’s Mission “To ensure women and girls have access to the highest attainable standards of healthcare”
Thalassemia Awareness Project (TAP) TAP was initiated to meet the Soroptimist International’s health goal: “to ensure women and girls have access to the highest attainable standards of healthcare”. It was our charter project in 2015, and it is still an ongoing campaign we believe in. The goals of TAP are to work hand in hand with other local and international entities to raise awareness, raise funds, and develop a support system for thalassemia survivors. Most importantly, we have the ambitions to help establish a blood-disease center to help patients and their loved ones through their thalassemia journey.
The 2017 TAP seminar aims to raise awareness about the cause and educate the public about the realities of living with thalassemia and where to get tested in order to make an informed decision before possibly passing on the gene.
Goals of the SK Club Thalassemia Project
- To provide a Thalassemia Center to help patients receive their Regular blood transfusions and manage their chronic iron overload To promote blood drives
- To raise awareness for organ and bone marrow donations
- To set up a website to receive donations for the Thalassemia Awareness program
- To create support groups for parents and families of thalassemia Patients To work together with other health-related organizations in Kuwait
Palliative Care
End-of-Life Care: Help and Hope When There is No Cure 2017 –Palliative Care is probably the most misunderstood specialty in the entire field of medicine. That is because for most people, the medical profession is synonymous with saving lives. For patients with life-threatening illnesses, just as important as the gift of life is the right to have a better quality of life until a peaceful, dignified, and pain-free death. Soroptimist Kuwait hosted SANAD, the Home Hospice Organization of Lebanon, in Kuwait to learn about the system they created for hospice and palliative care at homes.
Soroptimist Kuwait had the honor of conducting a compelling panel discussion on “End of Life Care: Help and Hope When There is no Cure. Experts in the field of palliative and hospice care from Kuwait Palliative Care Center, Bayt Abdullah Children’s Hospice, and SANAD, the Home Hospice Organization of Lebanon explained how palliative and hospice care actually affirm life and why their expanded services are so urgent and vital for terminal patients and their families. It is hoped that fellowships and more training programs in palliative care can be offered to doctors and other medical staff, so that palliative care services in Kuwait can be expanded.